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Cancer Experience Registry

  • OPACC
  • Mar 23, 2017
  • 1 min read

The Cancer Experience Registry, a research study of the Cancer Support Community. This is also open to Canadians.

The Cancer Experience Registry is a research study to identify and advance the understanding of the emotional and social needs of people who have been diagnosed with cancer or people who have provided care to someone with cancer (i.e., informal or family caregiver).

There is no cost or compensation for participation, however, the information from the study will be used to support greater understanding of the needs of cancer survivors and those living with the diagnosis, raise awareness of the challenges of people affected by cancer, and develop programs and services that will address the needs and ultimately improve the long term quality of life of people impacted by cancer.

The Cancer Experience Registry is a unique online community that allows people facing cancer to share their experiences, identify the issues that impact their lives, take surveys, access resources and learn from each other. It is free, confidential and open to anyone who has been diagnosed with cancer or provides care to a cancer patient.

For more information and to participate, please visit: https://www.cancerexperienceregistry.org/join

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