Free Education Day for families at SIOP Congress
The SIOP Congress in Toronto - the largest annual paediatric cancer meeting in the world - is hosting a free Education Day for parents and families on Wednesday, October 22nd from 8:30 a.m.-5:00 p.m. The location will be Conference Rooms B&C at the Sheraton Centre Toronto hotel located at 123 Queen Street West.
Please note that OPACC's very own Parent Liaison, Susan Kuczynski, will be presenting during the Parents/Survivors Abstract Oral Presentations session between 3:30-5 p.m.!
Schedule: 8:30-9 a.m. Workshop #1 Invited Speaker (Chairs: Ruth Hoffman, Simon Lala) Dr. Ronald Barr, MD, Canada: The Needs of Adolescents and Young Adults (AYA) with Cancer: Are These Being Met and How? An International Perspective (20 minutes) Followed by Q&A (10 minutes)
9-10 a.m. Workshop #1 Roundtable Discussion: Access to Care Issues for Adolescent and Young Adults with Cancer
10 a.m. Coffee Break
10:30-11 a.m. Workshop #2 (Chairs: Ruth Hoffman, Simon Lala) Kenneth Dollman, South Africa & Benson Pau, Hong Kong: Pain Care Management in Children
11-12 p.m. Workshop #2 Roundtable Discussion: Pain Care Management in Children
12 p.m. Lunch Break
1-2 p.m. Workshop #3 Roundtable Discussion (Chairs: Ruth Hoffman, Carmen Auste) Carmen Auste, Philippines: Creating an International Childhood Cancer Advocacy Strategy Identifying Common Advocacy Issues
2-3 p.m. Introductions & Moderation (Chairs: Carmen Auste, Simon Lala)
Parents/Survivors Abstract Oral Presentations (15 minutes each) Sabine Karner, Austria: Nothing About You Without You! Parents and Patients Views on Clinical Trials and Biobanks. Results from the EU-FP7 ENCCA Project and Lessons for the Future
Poonam Bagai, India: Quality Care, Research and Impact (QCRI): A Key Dimension to Childhood Cancer Support and Advocacy Groups
Victoria Sardi Brown, USA: When Tragedy Inspires Hope: A Parent's Call to Action to Create and Implement a Psychosocial Standard of Care for Childhood Cancer
Followed by Q&A
3 p.m. Coffee Break
3:30-5 p.m. Introductions & Moderation (Chairs: Carmen Auste, Poonam Bagai)
Parents/Survivors Abstract Oral Presentations (20 minutes each) Susan Kuczynski, BSc Hons, ART, CMed, OPACC Parent Liaison, Canada: The OPACC Parent Intervention Group and Parent Liaison Program at the Hospital for Sick Children
Saideh Ghods, Iran: Corporate Social Responsibility (CSR) or Opportunity
Dr. Roula Farah, MD, Lebanon: Engaging the Youth and General Public in National Awareness Campaign: The Lebanon Experience
Dr. Aziza Shad, MD, USA: The Aslan Project: Treating Childhood Cancer in Ethiopia
Followed by Q&A
Registration: In order to register for this free Education Day, please follow these instructions:
1 - Go to http://siop.kenes.com 2 - Click the orange "Register Now" button 3 - Click the blue "Online Registration" button 4 - Select "Educational Day only" (DO NOT check off "Parents/Survivors" or you will have to pay!) 5 - Enter your contact information, click the "Begin" button, and proceed